Privacy Policy

Privacy Policy
No works or photos displayed on this website may be reproduced in any way or form without specific written permission from The Progeria Research Foundation, Inc. All such requests for permission must be made in writing and submitted to

The Progeria Research Foundation (PRF) believes that addressing concerns about online privacy is critical. Any information that you give to PRF will be held in accordance with this privacy statement, and will not be used in ways to which you have not consented. A more detailed explanation about how we care for your personal information follows.

Collection and Use of Information:
Browser information collected on the website: As with many website operators, PRF analyzes our website logs to improve the value of our website to our visitors. We use an external service to provide reporting to us of browser accesses to our site. This includes page views, unique views, unique visitors, repeat visitors, frequency of visits, and peak-volume traffic periods. In our use of this service, we do not gather, request, record, require, collect, or track any Internet users' personally identifiable information.
Use of Flash and cookies: We use a Flash applet on our website to provide each visitor with a unique aesthetic experience. The Flash applet queries your computer's clock to update the Miracle Minutes located on each page of our site. We do not link any personally identifiable information to the Miracle Minutes time. We do not use cookies on our site.

If for any reason you believe that PRF has not adhered to these privacy principles, please notify us by e-mail at, and we will endeavor to review and correct the problem promptly. Please use the words "Privacy Policy" in the Subject line.

External Links:
This website provides links to various websites that PRF does not control. When you click on one of these links, you will be transferred out of our website and connected to the website of the organization or company that you selected. Even if an affiliation exists between our website and a third party website, we exercise no control over linked sites and are not responsible for the content or privacy practices of such other sites. Each of these linked sites maintains its own independent privacy and data collection practices and procedures. If you visit a website that is linked to our site, you should consult that site's privacy policy before providing any personal information.

Children's Privacy:
Because we care about the safety and privacy of children online, we comply with the Children's Online Privacy Protection Act of 1998 (COPPA). COPPA and its accompanying FTC regulation establish United States federal law that protects the privacy of children under 13. Our site is not intended to solicit information of any kind from children under 13.

It is possible that due to fraud or deception by others, we may unknowingly receive information pertaining to children under 13. If we are notified of this, once we have verified the information, we will promptly obtain parental consent or otherwise delete the information from our servers. If you want to notify us of our receipt of information in relation to children under 13, please do so by emailing us at
Terms and Modifications to Privacy Policy:

By using this website, you signify your agreement to the terms of our privacy policy. PRF may modify this privacy policy at any time at its discretion and modifications are effective upon being posted on this site. You are responsible for reviewing this privacy policy periodically to ensure that you are aware of any changes to it.

Contacting PRF on Privacy:
If you have any questions or concerns regarding privacy on the PRF website, please contact the Webmaster at

This policy was last updated on August 14, 2014.